my precious Sophia

Well, I don't really know where to start so I will keep it short for now. This has been such a difficult time for my family and I, and just want to say that I truly admire the strength that my sister has through this difficult time in her life. I keep trying to prepare myself for Sophia's arrival, trying to figure out how to best support my sister, and trying to think of things that I would love to do with my niece Sophia while she is here, like paint her toes, and comb her hair, and bring her a true "birth" day cake, in case it is the only one we get to spend with her while she is here. Every time I tell someone about Sophia's diagnosis it is the same response almost without fail, "Doctors can be wrong" or "Pray for a miracle, they can happen". Well trust me, I know Doctors are sometimes wrong, and I pray daily for a miracle. But for my family and I it is difficult to depend on miracles that we know may never come. So I say my prayer for a healthy Sophia every morning and then spend the rest of my day trying to figure out how we will ever be able to wade through these waters again, this type of tragedy just shouldn't hit the same mother twice. I don't want anyone to think that we have given up hope for a healthy Sophia or that we don't believe in miracles...we do! It is just that sometimes the only way to get through the day is to accept and prepare for a history that will most likely repeat itself regardless of how much we hope and pray against it. Ever since Jo-Jo passed away at 9 days old, I have always wondered if it would have been easier if we had known he was affected and that he would not survive. But I never...ever thought that I would get the answer to that question, unfortunately I have. I realize now that there is no easy way to get through this regardless of whether or not you know the childs health before they are born, a loss is a loss period. Sophia will be here before we know it, and for me, I will take it one day at a time loving her more tomorrow than I did yesterday and thanking the Lord for every second that we are blessed to have her here in our arms. Well so much for this being short....guess I did know where to start. Thanks for reading and I am hoping that this will give you all some insight into our lives and maybe even answer some questions that you didn't know how to ask.