To our family and friends:
On this eve of Sophia Grace’s first birthday (yes we do celebrate them!) I can’t help but reflect on how much we’ve lost. Two precious babies that our family desperately longs for, grieves for, and unconditionally loves without regard for the barrier death brings. But we’ve also gained things that we wouldn’t have without those losses. An incredibly tight family bond. An appreciation for life. A depth of patience and understanding with the living legacies (Donovan, Emma, Arianna, & Shawn) we’ve been entrusted with. And the hidden blessing-the desire to help children born with NKH. We’ve experienced first-hand the devastation this disease brings to families living with the effects of this disorder.
For $70,000 per year, a very small sum in research terms, we have the power to free up the only researcher in the world dedicated to helping our children. Please help us help him by attending our first annual Hope for NKH auction, April 2nd, 2011 at 5:30pm. Come join us for dinner (Olive Garden, yummy!) and pick up a few items you won’t want to miss out on!
To purchase tickets:
Online: http://hopefornkh.ticketbud.com/hopefornkh
Mail a check to the address below and we will send you your tickets
Blessings,
Joe, Sarah, Emma, & Shawn
Happy Birthday to you sweet Sophia! I know that you celebrated today with all of your buddies in Heaven.
ReplyDeleteYou are truly missed everyday by your dear siblings and parents...and many others. You are such a beautiful Angel!
Mary Fitzpatrick
Happy Mothers' Day Sarah! You are an amazing woman and an even better mommy to four of the luckiest children!! You and your beautiful family are always in our thoughts and prayers!
ReplyDeleteI always think about Sophia Grace
ReplyDeleteYou're in my prayers.
Dania Zapata