Thanks to all for following our journey. We are blessed to be surrounded by loving, caring, compassionate people. Our basic needs for food and support are being met by so many of you it's overwhelming.
I wish I had good news. It's been a very rough day. Sweet Sophia is continuing her decline. She is no longer feeding, and is not peeing (but still pooping!). Her seizure activity is continuing off and on and we are very worried about her comfort. She looks so incredibly peaceful it's hard to believe her body is being ravaged by the glycine her body cannot handle. Her breathing is becoming a bit more labored and we are monitoring her fairly constantly. Her temperature dropped to 97 degrees and we wrapped her in warm blankets fresh out of the dryer. That brought it up fairly quickly to 98.4. Hospice says the extremities become cold as the blood is diverted to the critical organs that are slowly shutting down. Joey & Sarah decided to give her Lorazepam to try to calm down her seizures and possibly help her eat. It did seem to work, but only for a bit and her heartbeat dropped to 112 beats per minute which put us all into panic mode. No more Lorazepam for now.
Sarah is trying to stay strong, but it's difficult. A mother's love is a very powerful bond and it is impossible to think of that bond broken by our earthly constraints. It will take every ounce of love we have for each other to survive this. Emma knows something very powerful is happening and is struggling to comprehend. When Auntie Randi & I picked her up today, she asked where we were going. We said "home to see your baby sister". She said "my baby sister's going to heaven". Very matter of fact. Heartbreakingly poignant out of the mouth of an almost-four-year-old. I fear she will grow old before her time.
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Once again I'm overwhelmed with tears and continued heartache. I can't imagine what the family is feeling during these times. Every ounce of me wishes I could be there, none of what is going on seems fair.
ReplyDeleteI'd consider myself to be a true believed in Christ. But these days I find it extremely hard to remain loyal to him; why is this happening to the special people in my life again? If it is to show us that the Harris family is strong and brave,well, we learned that with Jo Jo. So why is he doing it again? Obviously there is a reason, just wish he would fill Sarah and Joey in on it.
Prayers, strength and endless support continue to be sent your way Harris family. Your BFF in Georgia loves you guys. Please give all those awesome kids H&K from Auntie.
Heavenly Father, I call on you right now in a special way.
ReplyDeleteIt is through your power that I was created.
Every breath I take,
every morning I wake,
and every moment of every hour,
I live under your power.
Father, I ask you now to touch me with that same power.
For if you created me from nothing,
you can certainly recreate me.
Fill me with the healing power of your spirit.
Cast out anything that should not be in me.
Mend what is broken.
Root out any unproductive cells.
Open any blocked arteries or veins and rebuild any damaged areas.
Remove all inflammation and cleanse any infection.
Let warmth of your healing love pass through my body
to make new any unhealthy areas
so that my body will function the way you created it to function.
And Father, restore me to full health
in mind and body so that I may serve you the rest of my life.
I ask this through Christ our Lord. Amen.
Words are inadequate at a time like this. My heart breaks for your family, as I know this pain all too well. One second at a time is all you can take right now. Please know you are wrapped in our love and prayers. Precious Sophia is here for a reason and will be remembered because she LIVES. Please remind Sarah that if there's anything at all I can do, I'm a phone call away. Thank you.
ReplyDeleteAngie Carter
Lord God - Please wrap your arms around this family as they struggle through such trials and tribulations. Give them your strength, courage, love, support and peace. In Jesus' name I pray, Amen.
ReplyDeleteSarah, April & Family - Prayers are going up for you all every second of the day. Know that soooo many people are following your journey, bleeding for you, crying for you, trying to come up with anything we can do to help, and always coming back to prayer. I know that you have many people supporting you right now, but if you are in need of a home-made meal, shoulder to cry on, or anything in between, please call me. My cell is 253-298-6530.
Hugs & Kisses, Joanna
First of all we asked God to give us the words to say to these people that we hold so dear to our hearts. No one should have to go through this. We have been hand in hand the entire family praying for God to cradle you all in his arms and help you through this. Chuck and I Have asked God to give us your pain as we cannot feel all that you are feeling but we can only know that we would take it all from you if we could. Please know that we are thinking of you every minute of every day and asking God so many things including to find a vessel to use to find a way to a cure for this disease. We love you all and want you to know that if you need us send a message as we have felt that you all may want the house full of people. Just know that we are there in in heart and spirit. If you need anything please call.
ReplyDeleteHAPPY 5TH day birthday Sophia Grace little darling.
We love you all dearly.
Chuck & Wanda, Miranda & Mack Chris, Dru, Lil Mack, Jayden, Kyley Rose & Kenzie.